The health of parents who support a child or adult with a learning disability

Please read the following email Southampton Mencap has received regarding the health of parents/carers of people with learning disabilities and, if possible, take a little bit of time to fill out the online survey which is linked at the end.

I am the parent carer of a child who has both learning & physical disabilities and I am in my third year of undertaking a PhD at London South Bank University which is exploring the health of parents who support a child or adult with a learning disability.

Parents of children who have a learning disability are known to spend the longest time as carers and we are known as ‘perpetual parents’. However most research reports on the health of ‘all carers’ and our health is compared to that of shorter term carers for example those caring for someone who has dementia or receiving palliative care. Therefore my research will add to the body of knowledge which explores our specific health and needs as parent carers as we need to stay in good health in order to care for our children over their lifespan.

I need a minimum of 200 parents countrywide to participate in my research to make the findings valid and to get them published. The survey is completely anonymous and should take no longer than 15 minutes to complete and includes questions about you and the child/adult you support, questions relating to your general health, your experiences of being a parent carer and whether you feel this has had an effect on your health and wellbeing. At the end the survey you can see how some of your answers compare to other parents who have participated.

For more information or to take part please click the link (you can exit at any time): https://www.surveymonkey.com/r/Parent_carers_health_survey

Thank you very much for your time
Regards
Carole Beighton